God doesn't give children with special needs to strong people; He gives children with special needs to ordinary, weak people and then gives them strength. Raising a child with special needs doesn't take a special family, it makes a special family.

Thursday, April 22, 2010

Many of you know that about 2 weeks ago Brenden got his new walker....and well, he's been doing amazing!!!! We can never get a video to post on here, so I posted it on You Tube and will copy the link!!
Please also continue to keep Brenden, Jonathan, and I in your prayers. May 13 Brenden will be having a rather major surgery. The Neurosurgeon has decided after the follow up MRI that it is best to go ahead and drain the cyst on Brenden's spine. If left alone, it could put pressure on the spinal cord, causing some pretty serious problems. He will also be doing a Chiari decompression, which involves removing a piece of Brenden's skull as well as the C1 vertabrae. Kids born with spina bifida also have Chiari Malformation, which is when the cerebellum is 'pulled' down into the spinal column. With this decompression surgery, the pressure on the cerebellum should be relieved, which will allow CSF to have better flow, in turn, hopefully will keep another cyst from forming. Did ya get all that?!?!
Jonathan and I were definitely taken off guard, especially since the Neurosurgeon wasn't really concerned after the first MRI. It was actually the radiologist that wanted the follow up. But I think we are now at peace with him going in for surgery. We trust Dr. Jane completely and know that he has Brenden's best interest at heart. This surgery will be longer than the one at birth, so please keep Jonathan and I in your prayers. Also pray for a quick recovery and short hospital stay for Brenden (and me...nights in hospital chairs are never fun)!!


Krista said...

Always in our prayers. Love to you all.

Aunt Barb/Uncle Larry said...

You all are in our prayers, but we will be making this a major prayer. I know you all are like us, you are so thankful that we have that Comfort, that Friend that is alwaus there, never too busy, God is good...love you all

Jennifer Dugan said...

Brenden & you all are always in my prayers. I promise to keep this a big matter of prayer. I cant wait to hear the great news when this is over! His video is inspiring. Such determination & such a sweet spirit. I love you all dearly. In my constant prayers:) Just keep doing what you have been doing because you guys are AMAZING!!

Anonymous said...

you are always in my prayers, i trust god that you will be fine and be coming home soon afterwards, mommy and daddy are very strong and will be there all the time, love love love you all